Videos on Fetal Alcohol Spectrum Disorders

I have done a lot of research on Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorders (FASD). I’ve read tons of articles, a couple of books, scoured websites, etc, but I had never come across this series of videos until last week when I read a post at Grown in My Heart. The videos are called “The Invisible Children and Families of Fetal Alcohol Spectrum Disorder.”

Sometimes its hard to describe to people what it is really like living with FAS, for Colin and for us, and what we are fearful of in the future, but the women in this video get it. They say what I have said and written before, almost word-for-word. I cried, and I could not stop crying, when I watched this, especially Part 2 and Part 3. It hit very close to home.

“I did a lot or research on Fetal Alcohol [Spectrum Disorders] on the internet, and it’s still not enough to teach you. You have to live it.”

“He looks SO normal… You would just look at this child and go, ‘There’s nothing wrong with you.'”

“When you meet him, he is the sweetest little thing, and you can’t see it.”

“It has to be retaught, retaught, retaught, repetition, because they do have holes in their brains.” (FASD brains are neurologically different from typically developing brains. It’s often called the Swiss Cheese Effect because their brains literally have holes in them.)

“He can be the most wonderful boy, but then he just trips and he’s out of control.”

“People find her very charming and engaging, and they can’t see what we live with every day.”

“The school, the county, they could not see what her functioning was like because they only had to deal with her for brief moments in time. They couldn’t see the big picture.”

“There are people who still chide us and tease us, ‘Oh, they don’t do that,’ because they’ve never actually witnessed a behavior that we talk about or a rage or something. A lot of it is hidden.”

“We can be viewed as enabling sometimes, or as bad parents, or as bad disciplinarians.We’re not perfect, but that can be frustrating.”

Here is the series:

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One thought on “Videos on Fetal Alcohol Spectrum Disorders

  1. Pingback: 2011 didn’t suck (or blow) | My Minivan Rocks!

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